Shauna’s Story:

Learning to Dance in the Rain

The Initial Diagnosis.

On July 28, 2005, I found myself in a surgeon’s office with a very large, long large needle jammed into my left breast.  It was my son’s 1st birthday, and I just kept thinking “This cannot be happening”.  “It’s my baby boy’s first birthday, I am only 33 years old.”  “How could I possibly have breast cancer?”  Despite my protests, my breast cancer diagnosis was confirmed a few days later, and my life changed forever.  I knew I had to stay alive for my baby boy, so I did everything my doctors recommended and then some…..9 months of grueling chemotherapy followed by a double mastectomy, many years of ovary function and hormone suppression, and the eventual removal of all my reproductive organs.  Years passed, and some days I would allow myself to believe that my breast cancer might be gone forever…. But breast cancer has a nasty habit of coming back, even years after the initial diagnosis and despite previous treatment.

Living Today with #MBC.

In late 2017 I underwent the second of two surgeries to replace my breast implants from the reconstruction that followed my double mastectomy 12 years earlier.  Three weeks post-surgery my surgeon called me in tears to let me know that tissue samples from the surgery indicated my cancer had returned in my left breast.  It was very quickly determined that not only it back, it was back and on a mission having spread throughout my entire left breast and chest wall and into the bones of my lower vertebrae.  Many more surgeries followed to remove the cancer from my chest, followed my radiation and a very painful reconstruction process….all the while undergoing treat for my cancer which as it turns out has a very high IQ.  During the 12 years since my initial diagnosis things had changed, and my doctor was now able to order tests which identified the genetic make-up of my breast cancer including that I had the dreaded PIK3 mutation (a mutation which accelerates the speed at which the cancer finds a way around treatments).  The results of this test provided the basis for a customized treatment plan which I am still on today.  

Today my breast cancer continues to be microscopic, even 6 years after my diagnosis with #MBC.  Over time it has spread slowly throughout my entire skeleton and more recently taken hold in my liver, but I still do not have any tumors large enough to biopsy.  

I firmly believe I am still alive because I was provided with a customized treatment plan of targeted therapies which are specific to the genetic make-up of my type of #MBC.   This was provided to me immediately upon my diagnosis with #MBC and it still serves as the guide for my treatment today.   While my cancer is smart and adapts quickly as a result of my PIK3 mutation, my customized plan always guides the way and allows my doctors to move quickly to a new therapy as soon as one has stopped working.

Learning to Dance in the Rain.

While my targeted treatments are far less toxic than traditional chemotherapy they are not without side effects.  Fatigue and pain are my constant companions. 

Eventually, I came to terms with the fact that this particular “storm” would never pass and that I just needed to “learn how to dance in the rain”.  

Most days I am grateful for my now almost 20-year tango with breast cancer which has taught me so many lessons and forged me into the person I am today.  

I don’t know what the future holds for me, but I intend to keep living each day to the fullest, loving deeply and dancing often.  I will be eternally thankful for the amazing medical care I have received and the gift of time that care has given me.   That gift of time has allowed me to see my baby boy grow from a toddler in diapers into the amazing young man he is today and to witness his graduation from high school and the start of his college adventure.  It gave me time to love and be loved again.  Time to continue practicing law and support and be supported by my partners and clients.  ……and time to finally understand that life is not about waiting for the storm to pass but about learning how to dance in the rain!  

Please help me give the gift of time to other women living with #MBC.

- Shauna Martin, Founder